Let's Talk About Brain Tumours
Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease.
Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yours or your loved one.
Episodes
59 episodes
Episode 59 - Spotlight on Women in Neuroscience
In this episode Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience. They share their passion for neuroscience and the work they are doing now and their plans fo...
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Episode 59
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24:49
Episode 58 - Hidden disabilities
In this episode we meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours, Gavin has been living with his brain tumour for 28 years after he was diagnosed at 21. Gavin and Louise have been friends for years so ...
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Episode 58
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44:13
Episode 57 - Spolight on Mental Health Support
In this episode, Chandos talks to Beth Ryall, about the support available at the charity for people who are experiencing difficulties with their mental health following a brain tumour diagnosis.You can find out more about the support av...
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Episode 57
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9:35
Episode 56 - Rehabilitation for brain tumours
In this episode, we talk to Anya Jones and Kaz Melvin about their experiences of rehabilitation. Anya was diagnosed with a brain tumour and needed extensive rehabilitation after her diagnosis and treatment whilst Kaz has both personal and...
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Episode 56
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45:54
Episode 55 - Spotlight on Research into Glioblastomas
In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneo...
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Episode 55
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16:52
Episode 54 - Living with a rare brain tumour and Everest in the Alps
In this episode, we talk to Alex, Katie and Martin. At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support ...
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Episode 54
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50:35
Episode 53 -Using exercise as a form of therapy
In this episode, we talk to Liam Young about his recovery from his brain tumour. Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer.Lia...
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Episode 53
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56:24
Episode 52 - Ravi's Dream
In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to c...
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Episode 52
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54:44
Episode 51 - Spotlight on the Ways Ahead Research Project
In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to unde...
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Episode 51
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23:34
Episode 50 - Life after losing a parent - Growing and Thriving
In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life. Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now...
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Episode 50
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42:02
Episode 49 - Spotlight on the Children & Families Service
In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18. Some of the things mentioned in this ...
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Episode 49
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14:28
Episode 48 - (TW) Coming to terms with change
(Trigger Warning) In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family. He talks about the impact on menta...
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Episode 48
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30:21
Episode 47 - Spotlight on Young Adults Masquerade Ball
In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a b...
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Episode 47
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16:25
Episode 46 - (TW) 'Your child has a brain tumour'
(Trigger Warning) In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 mo...
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Episode 46
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56:11
Episode 45 - Mummy has a lump
If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do. In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote afte...
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Episode 45
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34:35
Episode 44 - Spotlight on Ahead of the Game Foundation
In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients.Dave talks about what led him to creating Ahead of the Game and what services th...
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Episode 44
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19:10
Episode 43 - Headaches and Brain Tumours
In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all i...
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Episode 43
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47:27
Episode 42 - Spotlight on Family Led Partnerships
In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity. She explains what family led partnerships are, the different types and why they are so important to the charity. Family led partnerships are so...
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Episode 42
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15:57
Episode 41 - PCV Chemotherapy
In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV. They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and mor...
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Episode 41
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47:49
Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours
In this episode, we talk to Hannah Waldron about the TIME Art Exhibition .The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a...
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Episode 40
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16:31
Episode 39 - Caring beyond a brain tumour
In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day' about their experiences of caring for their partners who both live with the impacts of brain injury. Elizabeth's husband Paull had a stroke when...
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Episode 39
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46:26
Episode 38 - Spotlight on getting benefits and money advice (UK)
In this episode, Chandos talks to Denise one of our benefits advisers. Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with...
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Episode 38
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10:36
Episode 37 - Brain Tumours and Seizures
In this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures. We talk about...
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Episode 37
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37:17
Episode 36 - Spotlight on Involvement Champions
In this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity. They share what being an Involvement Champion means, not just in terms of their role and what they have done as Involvement Champi...
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Episode 36
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25:32
Episode 35 - Christmas - Caring for or coping with the loss of a loved one
We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this...
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Episode 35
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23:14